NORD’s Jayne Holtzer Rare Disease Research Grants Program

Organization
National Organization for Rare Disorders (NORD)
Type
Foundation
Application or LOI Due Date
08-25-2020
Brief Description

Requests for Proposals

The NORD Jayne Holtzer Rare Disease Research Grants Program provides seed-money grants to qualified investigators for scientific and/or clinical research. The hope is that these studies ultimately will lead to new diagnostics, treatments, and/or cures for rare diseases. NORD’s program provides grants for the study of diseases for which there are few other sources of funding. Grants are made possible through the generosity of allies in the rare disease community and supporters who have donated into NORD’s research fund.

Since the program’s launch in 1989, NORD grants have led to the development of two FDA-approved treatments and numerous peer-reviewed publications. More than 200 grants have been awarded representing over $9 million in approved funding.

NORD Research Grants

  • NORD, with funding from the patient member organization Appendix Cancer / Pseudomyxoma Peritonei Research Foundation (“ACPMP”), is accepting applications for two, 2-year grants, $50,000 US per grant, for scientific and/or clinical research studies related to pseudomyxoma peritonei (PMP). Download RFP
  • NORD, with funding from the NEHI Research Foundation, is accepting applications for a total of $50,000 US for scientific and/or clinical research studies related to neuroendocrine cell hyperplasia of infancy (NEHI). NEHI, initially described in 2005, is a subtype of children’s interstitial lung disease (chILD) with an undefined etiology. Download RFP